As my
mother’s dementia worsens, she is increasingly anxious and restless, unsure of
what to do with herself. In her Memory Care unit throughout the day, residents
participate in activities including balloon volleyball, masterpiece coloring,
bingo, and sing alongs. They watch old movies and interact with therapy
dogs.
Getting my
mother to participate at her program is hit and miss – but mostly miss. Never much of a social person, my mom spent
little time in small groups; she preferred reading novels and playing bridge,
solitaire, or maj jong on her computer for hours, but she has lost the
cognitive ability to do these things. She went along for a whirlwind of social
engagements with my hyper-extroverted father when he was alive, but often spent
her free time alone.
She’ll
come out of her studio apartment, claiming that she needs help, but cannot articulate what she
wants. When the staff suggests that she partake in an activity, she refuses,
returning to her room, only to re-emerge ten minutes later with the same
non-specific request for help.
I’ve
been wracking my brain with how to engage her.
My mother owned and managed her own pharmacy for thirty years, and prior
to that she helped out at my father’s pharmacy from the time they were married.
She had a strong work ethic and valued
her skills as a small business person. I
started thinking about what “work” we could give my mother as an activity. Initially, I came up with sorting beads by
colors, and spoke to Tanya, the Memory Care director about setting my mom up.
Tanya gave
her beads to sort and for a few times she did this, but then lost interest.
Tanya brought in a basket of laundry for my mom to fold, but never much of a
domestic type, my mom shunned this activity, as well.
And then
I had my big idea. She could fill prescriptions. Everyone in my family counted pills behind
the pharmacy counter at one time or another in our lives. I envisioned her sorting
and counting pills into vials.
At my
neighborhood CVS, I bought candy – white and green Tic Tacs, white speckled
Memento mints, gum pellets, and Skittles -- anything that vaguely resembled drugs.
Then I stood in the Consultation line at the Pharmacy counter, waiting to ask
an employee to sell me some empty pill vials and labels.
I looked
at the stressed out woman pharmacist, and a officious, unsmiling pharmacy tech
worker, and did not feel confident that they would help me out. Then I spotted another pharmacy tech, a young
man who was busy entering something into a computer. I asked him if he could
speak with me for a minute.
“Hi. I have a slightly unusual request,” I
explained. “I’d like some empty vials
and some pharmacy labels. My mom is 88
and she has dementia. She used to own a
pharmacy, and I was thinking that she might enjoy doing some work, preparing
prescriptions. They’d be fake, of
course…”
He immediately
nodded and said, “Yes, I get it. My
Uncle was a pharmacist and he had dementia, too. We used M&Ms.“
“I just bought a big bag of Skittles; thanks
so much,” I told him as he filled an empty bag with two dozen vials of all
sizes, and gave me several pages of empty drug labels. He didn’t charge me a cent.
I
stopped at The Container Store and bought some baskets to store the supply
bottles and empty vials.
At home on
the dining room table, I worked on setting up my mad pharmacy. I affixed labels
to the vials, making up my own drug names and instructions. The drugs included: Kindosec, Lovexxx,
Funesium, Harmonesta, Sanfroidox, Pacifix,and Nophonia. I particularly liked Nophonia (500
mg. Take by mouth many times daily, preferably
with snacks), a perfect pill for my mother, since she phones me more than a
dozen times a day and I’ve taken to blocking her calls so that I don’t lose my
mind.
When I told my wife about my big idea she was skeptical. She didn’t think my mom would fall for candy pills, but I disagreed. I talked to the Tanya at Memory Care, and explained what I had in mind for this activity.
When I told my wife about my big idea she was skeptical. She didn’t think my mom would fall for candy pills, but I disagreed. I talked to the Tanya at Memory Care, and explained what I had in mind for this activity.
Tanya
was game, and I dropped off the Pharmacy supplies. The next day I received this email message
from Tanya:
Hi Sue,
Shirley sorted medications this afternoon for over an hour. I told her how much I appreciated her help, told her we were short on med-techs, and asked if she could help us with this on a daily basis. It was funny because several people thought they were real meds. Maybe we can work up to twice a day if she’s up for it. Thanks for such a brilliant idea! I’m annoyed with myself because I didn’t think of it first!
Have a good weekend,
Tanya
Hi Sue,
Shirley sorted medications this afternoon for over an hour. I told her how much I appreciated her help, told her we were short on med-techs, and asked if she could help us with this on a daily basis. It was funny because several people thought they were real meds. Maybe we can work up to twice a day if she’s up for it. Thanks for such a brilliant idea! I’m annoyed with myself because I didn’t think of it first!
Have a good weekend,
Tanya
Today, I
asked my mom how her day went yesterday.
“What did you do?”
“Not
much,” she answered.
“Did you
help Tanya out,” I probed. “She told me
that you assisted them preparing medication for the residents. How was that?”
“Oh yes,
I did that,” my mom remembered. “But
they didn’t pay me.”
“Hum…well
maybe they will pay you with good will,” I suggested.
She
looked at me slightly confused. “It’s great that you helped them out,”I
explained. “I’m sure that they really
appreciate your work.”
She
smiled. But knowing my mom as I do, I’m certain she is still waiting for her
paycheck.
now you can make some checks! Mad Pharmacy stationery of course!
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